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Lyme Light Radio: Healing After Plague

5/31/2015

Join Mara Williams and Judy Mikovits on Lyme Light Radio
Wednesday, June 3rd 1PM (PT) 4PM (ET)

Judy is a rare scientist who refused to compromise her integrity when her research did not bear out on a retrovirus and she went public with this finding. What followed was a nightmare for her when she found herself being scapegoated. Judy has much to say abut retroviruses, chronic illness, Lyme and other chronic infections. Her goal has always been to help people who suffer with illness to heal.

Judy Mikovits, PhD, earned her BA from university of Virginia and her PhD in biochemistry and molecular biology from George Washington University. In her 35 years quest to understand and treat chronic diseases, she has studied immunology, natural products chemistry, epigenetics, virology, and drug development. In just over 20 years she rose from a entry-level lab technician to become director of the Lab of Antiviral Drug mechanisms at the National Cancer Institute before leaving to direct the Cancer Biology program at EpiGenX Pharmaceuticals in Santa Barbara, CAlifornia, where she met and married David Nolde in 2000. There in 2006, she became attracted to the plight of patients with Chronic Fatigue Syndrome(ME/CFS) and autism and is primarily responsible for demonstrating the relationship between immune based inflammation and these diseases. She has published over fifty scientific papers.

Join Mara Williams and Judy Mikovits on Lyme Light Radio
Wednesday, June 3rd 1PM (PT) 4PM(ET)

LISTEN LIVE HERE

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Lyme Light Radio: Lyme Loonies

5/18/2015

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Join Mara Williams and Lyme Loonies Creator David Skidmore on Lyme Light Radio Wednesday, May 20th 1PM (PT) 4PM (ET)

LISTEN LIVE HERE

David Skidmore, Lyme sufferer and creator of Lyme Loonies, knows that there are lots of Lyme patients out there dealing with the misery, multi-symptoms and mystery of Lyme. Something else he knows is that a daily dose of comedy can bring laughter and hope to those suffering. Lyme Loonies is a series of cartoons that capture Lyme patients at their most vulnerable and desperate while hanging on to their sense of humor. The cartoons are David's way of expressing hope, humor, politics, and, yes, even revolt at the tug-of-war in which Lyme patients find themselves regarding funding, diagnosis, treatment, education, a cure, prevention and public apathy. He writes and draws about Lyme disease as he sees it, hears it, and feels it. David has had Lyme disease for almost six years now, along with every co-infection, and major neurological complications.

David stresses that Lyme Loonies is not about making fun of those inflicted with the disease. He states "I know first-hand the pain, suffering and confusion that Lyme can cause."

David got the name for Lyme Loonies when he read an article about a well-known doctor stepping down as head of research on Lyme with a federal organization. The doctor wrote "I will certainly miss all of you people - the scientists, but not the Lyme loonies." David thought "Here is a doctor of significant power and influence regarding the current and future state of our health, a man who took the Hippocratic Oath to honor the profession of medicine and, specifically, to cause no harm." David saw this use of Lyme Loonies as disparaging and a cause for a lot of harm both emotionally and scientifically. He believed that taking it back was the only thing to do, that it would make sense to embrace the term and use it for the community. He goes on to say "That was the remark that launched the Lyme Loonies cartoons. He will see that name and know that we will not be diminished by a flippant phrase. We have embraced it as ours!"

Lyme disease is controversial and David has certainly not shied away from showing that. Lyme Loonies are cartoons (soon to be published book) created in solidarity with those familiar with Lyme disease. They are cartoons to share with family, friends and those who are unaware of Lyme, because education and awareness will bring the change we all want, need and deserve.

Join Mara Williams and Lyme Loonies Creator David Skidmore on Lyme Light Radio
Wednesday, May 20th 1PM (PT) 4PM (ET)

LISTEN LIVE HERE

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Lyme Light Radio: What's Important to Patients?

5/4/2015

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Join me on Lyme Light Radio this Wednesday (5.06.15) for a focused discussion on the medical, legal and ethical aspects of evidence-based healthcare in the context of Lyme disease with Lorraine Johnson, CEO of Lymedisease.org.

We will talk about the differences between ILADS treatment guidelines and IDSA treatment guidelines, as well as the results of the recent IDSA survey that had over 6,100 responders!

Lorraine Johnson, JD, MBA, is the Chief Executive Officer of LymeDisease.org. She is an attorney advocate on issues related to the medico-legal and ethical aspects of Lyme disease and has published over 40 peer-reviewed articles on this topic. She co-authored the Lyme disease guidelines of the International Lyme and Associated Diseases Society, published in 2014. She serves as a patient representative of the Patient Engagement Advisory Panel for the Patient Centered Outcomes Research Institute (PCORI) and sits on both the Executive and Steering committees of PCORnet, a national patient-centered big-data project. She chairs PCORnet’s Patient Council. In addition, she is co-chair of the steering committee of Consumers United for Evidence-Based Healthcare, a nationwide coalition of consumer groups associated with the international Cochrane Collaboration and serves as a consumer peer reviewer for Cochrane evidence-based protocols and reviews. She has spoken before state legislatures, US and international governmental agencies, and at healthcare policy conferences throughout the world.

LISTEN TO THIS ARCHIVED SHOW HERE

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Lyme Light Radio: Healing After Plague

Join Mara Williams and Judy Mikovits on Lyme Light Radio
Wednesday, June 3rd 1PM (PT) 4PM (ET)

Join Mara Williams and Judy Mikovits on Lyme Light Radio
Wednesday, June 3rd 1PM (PT) 4PM(ET)

Lyme Light Radio: Lyme Loonies

Join Mara Williams and Lyme Loonies Creator David Skidmore on Lyme Light Radio Wednesday, May 20th 1PM (PT) 4PM (ET)

Join Mara Williams and Lyme Loonies Creator David Skidmore on Lyme Light Radio
Wednesday, May 20th 1PM (PT) 4PM (ET)

Lyme Light Radio: What's Important to Patients?

Mara Williams

Listen to Archived Lyme Light Radio Shows Below

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Blog

Lyme Light Radio: Healing After Plague

Join Mara Williams and Judy Mikovits on Lyme Light Radio Wednesday, June 3rd 1PM (PT) 4PM (ET)

Join Mara Williams and Judy Mikovits on Lyme Light Radio Wednesday, June 3rd 1PM (PT) 4PM(ET)

Lyme Light Radio: Lyme Loonies

Join Mara Williams and Lyme Loonies Creator David Skidmore on Lyme Light Radio Wednesday, May 20th 1PM (PT) 4PM (ET)

Join Mara Williams and Lyme Loonies Creator David Skidmore on Lyme Light RadioWednesday, May 20th 1PM (PT) 4PM (ET)

Lyme Light Radio: What's Important to Patients?

Mara Williams

Listen to Archived Lyme Light Radio Shows Below

Blog Archives

Categories

Join Mara Williams and Judy Mikovits on Lyme Light Radio
Wednesday, June 3rd 1PM (PT) 4PM (ET)

Join Mara Williams and Judy Mikovits on Lyme Light Radio
Wednesday, June 3rd 1PM (PT) 4PM(ET)

Join Mara Williams and Lyme Loonies Creator David Skidmore on Lyme Light Radio
Wednesday, May 20th 1PM (PT) 4PM (ET)